Asperger syndrome – TechCommGeekMom

It’s the climb…

Posted on October 15, 2022 by TechCommGeekMom

If you are on social media–specifically Facebook, you know that Facebook will show you “memories” from past posts on a given day. Recently, it’s been showing me posts and photos from what I think was very much a breakthrough day in the start of my career–spending 36 hours in Portland, OR at LavaCon 2012. I had done a webinar in about four months prior for Adobe, as someone who used to be in their marketing team discovered me, and had me participate in their webinar series at the time. But it was Adobe’s invitation to “cover” Adobe Day the day before the big start of LavaCon for this blog that was my first real introduction into the tech comm universe–I guess you can say my “debut to” tech comm society (like a debutante of sorts). There, I met many people that I had only known through social media, and remain friends with them to this day. Seven months or so from this writing will mark the 10th anniversary of the first STC Summit that I attended in Atlanta (which ironically will be in Atlanta again this year), and met a whole bunch more people similarly.

What’s hanging on in my mind is the journey I’ve had to take from that point at LavaCon 2012 to now…how many job changes I’ve had, how many dry spells of unemployment I’ve had, how many jobs that were good or bad, my adventures with STC and other tech comm outlets, and finally, all the people. I mean, some people that I met at LavaCon in that very short spell there are still friends who I rely on, and who I consider mentors. Same with those I met at my first Summit. Some of them gave me exposure and breaks to help me find jobs along the way and foster my writing. Sometimes, I’ve learned things that were not tech comm related that have either been set by example or were a good life skill. I think the point is that–WOW! Over the last 10 years, I’ve met SO many people in the tech comm field that have supported me along the rough road I’ve had to take along the way to get to where I am now, who didn’t give up on me when I had given up on myself. Hence, to get to where I am now, it’s been “a climb”.

These days, I’m in a good place professionally. For the moment, I like being a full-time employee, which I really haven’t been for more than 22 years (since before my son was born). I’m fortunate in that I get to work remotely, as this has always been important so I could be flexible and available for my family. I get to flex my tech comm muscles, and I feel like I do my job well, and have gained the trust of those I work with. I reflect on both the good contracts and not-so-good contracts I had, and how they’ve all helped me focus on what I do best, learn skills along the way, and figure out what I really want from my career. I’ve also advanced to being elected as a board director for the STC with some hard work, a lot of support, and some luck thrown in there, too. All the tech comm friends I’ve had along the way have supported me both professionally and with my STC endeavors, and that’s been a big help.

The one area that is suffering right now, however, is my sanity as a parent. I’ve written often about my son over the years. You would think that as a young adult with Asperger’s Syndrome who’s had so much support over many years, he’d be in a good spot. However, we’ve hit a big snag. He’s SO close to being done with his degree, but his program requires working at FOUR internships (basically, working for about 18 months as an apprentice) during his participation in the program. He’s made two attempts at working, and he never gets past working a full week. For him, working three eight-hour days plus two days of classes is just too much. He’s also putting a lot of pressure on himself because he feels he needs to be “perfect” or at least better than any other newbies there so that he can stand out, but he can’t keep up with the pace. He’s spent more time in a dealership bathroom crying than I think most people ever have! He’s just not ready for that. So far, the director of the program is allowing him to continue to take classes, but he’s not so flexible with this internship thing. He’s also not helpful, as it’s obvious that my son needs to be in an environment where accuracy of the work supersedes speed, which is not the environment of your average car dealership. The program director insists that the students need to find jobs on their own–which my son has done twice now, but he won’t help give us any leads for someone who might be a better fit for my kid so that he can gain some confidence and experience. We’re expected to figure out how to do this on our own. We’re all frustrated with this situation, to say the least. It’s actually giving me PTSD.

My husband and I have been looking for alternative programs where my son could transfer his credits. We’re also at a point where we’re trying to find alternative majors or training for my son, because his interest and confidence in his current major is waning. With his very, VERY narrow set of interests and a huge lack of motivation, this is proving very difficult.

I’ve been suffering from burnout syndrome for a long time, and I’m just so used to it that I truly don’t know how to full relax. I recently read that parents of special needs children that are higher functioning often have more stress than those who are much more dependent. So right now, my stress is so bad that I’m starting to not only do the usual of losing sleep and being grumpy and have the occasional eye twitching, but now my body is throwing in the occasional heart palpitations when I’m not even doing anything that stresses me out. That can’t be good.

So, while I’ve come so far because of the professional support I’ve gotten towards an important part of my life–establishing a solid career, now I have to figure out how to find the support to keep parenting and help my kid so that he can find some success himself.

It’s still a climb to balance this work/life thing. I’ve got the work thing down now, thankfully, and hopefully it stays this way for a long while. But this life thing…UGH.

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M-learning and E-learning will never replace teachers entirely

Posted on December 17, 2012 by TechCommGeekMom

As I start to write this, a few days have passed since one of the worst school massacres in the United States happened in Newtown, Connecticut. I won’t go into the details, only because it’s really all over the news here, so I’m sure that one could find out more very easily. But rather, I want to reflect a few thoughts on my mind about the situation, and what we as technical communicators and e-learning specialists can do.

The first thing to remember is that no matter what, teachers will never be replaced by e-learning and m-learning. That day, it was teachers who protected children and some lost their lives in trying to protect them. All these small children depended on these teachers to not only keep them safe, but to help the children through the scariest thing ever happening in their lives, and assuring them that they were loved, no matter what. There are instructors, and then there are teachers. The difference is that teachers will always go the extra length to ensure the success of their students, even to the point of ensuring their survival and mental well-being. If we can remember that e-learning and m-learning are tools of instruction, not taking the full place of teachers, that will ensure that learning technology understands its rightful place in education.

The second is that we need to educate the world on special needs people, and do more to help those with mental health issues. There are reports about how the gunman had Asperger’s and that allegedly Asperger’s patients are prone to violence. Let me dismiss that right away. First of all, that allegation is untrue. All Asperger’s people are not prone to violence. Something else had to be going on with this kid to go on a rampage like this, and from what little I do know, as best as his family tried to get him help, they couldn’t find the appropriate help. So, something else was going on beyond Asperger’s.

How would I know this? I have Asperger’s. If you’ve ever met me, I generally don’t have a mean bone in my body, and abhor violence with a passion. Violence is just so foreign to me, that I truly can’t understand how people can actually inflict pain like that on another person or being. My son is also Asperger’s/high-functioning autistic. He has a bit more of a temper than me, and when he was very small he lashed out, but it was out of frustration because he had difficulty speaking, and didn’t know how to control himself. He learned. He’s not like that at all now. The last thing he’d ever do is hurt another person, especially a small child. If anything, he’s actually very protective of smaller children. I have also met many families of children who are autistic or Asperger’s. They are not violent either.

The news media is trying to perpetuate that it’s the Asperger’s that caused it, and that Asperger’s people are prone to violence, as I said. I need people to help me stomp that myth out, because I have a son who already has high anxiety and self-esteem issues because he’s different, and that last thing my child needs is more stigma put around him that isn’t fair. The gunman had some other mental health issue going on, and as much as his family tried to help, they weren’t getting the full help he needed. Please help push mental health awareness…please be more sensitive to it.

I’m sure many of you work on policy and procedures in your jobs, or deal with topics relating to human resources and human relations. Please just remember your audiences, and remember to be mindful of all those who work hard every day to educate us and our children, and also for the families of those who struggle harder every day to help those who have depression and other severe mental health issues survive and thrive in our society. Perhaps this change that we expect in a few days is not the apocalypse, but rather it’s an enlightenment about mankind, that we need to protect ourselves in a way that doesn’t lock our children in schools like prisons, and help those who need the extra help get more help–that the mental health and special needs fields will have a revolution that will help make our global society function in a more successfully integrated way. Teachers will need to be at the forefront of this revolution.

I could continue to talk about this, but I think you get the point. Don’t get caught up in silly topics that don’t matter in the greater scheme of things. Use your position as a technical communicator or e-learning/m-learning specialist to make the world a better place. If we all pitch in together, we can make a real difference. If you don’t do it in honor of those little angels and their protectors who died in Newtown, CT, do it on behalf of me and my son.

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Why Mobile, Gamification and Special Needs Are Made for Each Other

Posted on August 13, 2012 by TechCommGeekMom

As the school year has started for some and will start during the following few weeks ahead, my thoughts start thinking about conventional learning and how educational technology has changed so rapidly, especially in the last few years.

Now, before I continue, I just want to preface this by saying that much of what I will be writing below isn’t based on any scientific study, but rather it’s based on my own experiences and knowledge.

I recently saw this article, and even retweeted it:

Autistic Student Feels Reinspired by Online Learning

I was so glad to see an article like this. We are constantly shown articles or videos about students who are much lower functioning than this kid, who are breaking through the communication wall through various apps on iPad. But I find that higher functioning autistic kids have a much harder time as the gap is much narrower, so it’s hard to define where the fine line between effective communication and ineffective communication is. As a result, these kids fall through the cracks of the system. Seeing that the young man in this article found a solution through online studies is fantastic, and I can relate to it a lot.

I am sure that I’ve mentioned many times before that my son is autistic, but much like the young man in this article, he is very high functioning autistic. My son is so high functioning that the actual autism diagnosis eluded us until he was 9 years old, and that was after already going through several other diagnoses and still feeling that something wasn’t quite fitting right. Through my son, while I have not gotten an official diagnosis, I’m pretty convinced that I am an Asperger’s Syndrome person myself; I have displayed so many of the same symptoms as my son, but I did not have the speech problems he had when he was younger (he’s fully language fluent now, due to early intervention and persistence). Even as a mother, I marvel at the various apps that are out there that could have helped my son when he was small, and I wish that we had access to it back when he was small.

My son is a smart boy. However, if something doesn’t interest him or doesn’t serve any meaningful purpose to him, then he’s unwilling to do the necessary schoolwork. As he’s gotten older, this has been problematic. He’s also a kid, and when it comes to mathematics, he doesn’t get the rote information down right away (like understanding his multiplication tables). But, show him how to do a mathematical function, and he can pick it up fairly quickly. He’s not always interested in reading, but he was reading when he was about 3, and when he reads something that interests him, he practically has the resource information memorized. He takes in videos like nobody’s business. Ask him anything about Super Sentai (the original Japanese Power Rangers), Kamen Rider, Power Rangers, Beyblades, Bakugan or Pokemon, and he can tell you everything about them. He also has a fascination with the sciences, especially physics, so when the Higgs Boson was recently proven, I asked him if he had heard about it, and he said, “Yeah, what about it?” and he explained what it was, and didn’t know that it had actually be proven. Keep in mind, the kid is only 11.

Yet, he struggles with school. It’s hard for him to focus, and sometimes he’s still processing things in his head when he’s paying attention in class. He can’t take notes to save his life, but he can learn from them. School is a difficult chore for him, and it takes some creativity to engage him to learn. He’s definitely capable of learning, but he can’t always learn by conventional means. He has a very difficult time with writing skills as well, which has been a struggle since he was small.

I can relate to my son on so many levels academically. I think this is why I end up being the one to do homework with him most of the time–I know how to “translate” things in a way that he can understand. I also had that same combination of hyper-focus on some topics, and total distraction on other topics, and had a hard time with school as well, even though I did well for the most part. If I had half the tools and support he has now when I was a kid, I would’ve been valedictorian of my class, I bet, but instead, I had to fight my way through much of school to get decent grades.

So, when I read the article above, I could relate to it so much because of my son, but also because of my own online experiences getting my Master’s degree from NJIT. My degree was 100% online, and despite what anyone would think, it was a very social event, yet I could pace myself the way I wanted (well, within reason–I still had deadlines for assignments and such). I want to say that the success in earning my degree and getting a straight “A” average was due to hard work and the quality of the program–which it was, but it was more. It was the delivery system. I’m very convinced that if I had done this coursework solely in a classroom environment, while I might have done well, I don’t think I would have done THIS well. Being able to set up my own schoolwork routine, read at my own pace, respond to forum threads and work on assignments at my own pace were a huge part of it. I’ve found for years that social media and just being connected to the Internet is not only addictive for me, but essential for me. It’s how I’m able to socialize more effectively and learn more effectively as well. For all those naysayers that say there’s no such thing as “learning styles,” I say, “Poppycock!” I am a living example of someone who needs to be taught more on a visual level than an audiological level; I have sensory issues but am simultaneously a sensory learner. My son is the same way.

So what does this have to do with mobile learning and gamification? EVERYTHING! There seem to be more and more studies that “typical” learners learn as much or more with mobile options and gamification methods. Imagine what it can do for special needs learning! My son is a big of a gamer, and I know at his age I love the earliest electronic and digital games myself. Even now, I’d much rather play an online game to learn than read my dry textbook. The trick for high-functioning special needs people like my son and I is that we–as I mentioned before–fall between the cracks; we don’t need things dumbed down for us, but we do need a different method to get the same information into our skulls, and everything is either over simplified and babyish (like some of the math games that he can play to get those multiplication facts into his head), or there isn’t something that is sophisticated enough that can achieve the same thing.

I envy my son, because e-learning is SO much more than it was when I was growing up. Heck, just having Internet access and email and social media is much more than what I had when I went to school. Getting my Master’s degree was the first time I could use such resources, and given the right tools as these digital ones, I could fly (metaphorically speaking). I want to see my son fly as well, as I know he’s capable of it. I try to find lots of physics game apps for him on my iPad, which he zooms through with ease. I need to find some age appropriate math apps, writing apps, and other apps that can help him learn without him realizing he’s learning, or at least make it more enjoyable. I want him to feel successful in whatever he ends up doing, and I want him to feel that learning is a lifelong endeavor, and that he is capable of finding the resources he needs to accomplish what he wants. We are still figuring this out, but like I said, the world is his oyster, and he needs to learn how to access it all, and I think he’s already on his way since he found the Super Sentai on his own (and yes, he watches these Japanese Power Rangers episodes on YouTube, in Japanese, sometimes subtitled, sometimes not, but he doesn’t care–he picks up what all of it’s about anyway).

Being that my son is a big gamer, he enjoys and adapts to games well. He was fortunate, this summer, that his summer school math teacher picked up on the idea of gamification, as every day my son and the other kids in his class would play a card/board game that would teach math skills. He enjoyed it very much, and there was a social skills aspect to it as well, which helped. Granted, it was not a video game or digital online game, but the principle is still the same–it was a game, and he was learning the skills he needed to learn. So many online games can teach without one realizing it, and making learning so much more accessible. Even the popular Angry Birds game–one of my son’s favorites–is actually a fantastic game that teaches physics and problem solving skills. I don’t say no to him playing Angry Birds on my iPad or iPhone. He’s learning, at least, and developing skills that may help in the future as some sort of engineer. Even as an adult, I can say that I would enjoy something more interactive online than something static or something that’s essentially a page-turner.

This is where mobile comes in. We all know the benefits of m-learning functionality, such as providing just essential information, having web capabilities to interact not only with others, but use tools like social media and researching on the web, and sharing resources is a big deal. Even the nature of m-learning is beneficial, because good m-learning design breaks things up in to small pieces than if it was done as a regular desktop course or classroom lesson. With m-learning, a child can record the class while attempting to take notes, and listen to it later while doing homework, rewinding parts of the lecture while rewriting or filling in missing information in notes.

I know for me, it was a big deal to be able to manipulate my studies to make them mobile. I would use the Microsoft OneNote app on my iPad to do initial drafts of homework assignments during my lunch hour, and then sync up my notes so that I could pull them onto my laptop later to clean them up more on my laptop at home. I could watch video or listen to a podcast on my iPad or iPhone, stop it and restart a section if I didn’t quite catch it–or even just stop so I could catch up writing notes first, then continue. You can’t do that so easily in a classroom. I could pace myself much better, and as a result, my retention was better because I could review details as needed.

This is really important for Aspies as they want to take in everything, and very often it hard to keep up because we are still deciphering and translating information given in our heads while the information keeps feeding. Sometimes our brains can’t process quite as quickly, so by the time we have a piece of information processed and we are ready for the next bit, instead of one new piece of information, then next five have happened. Keeping up and forcing oneself to keep up with the pace can be mentally grueling and exhausting. It’s not that we don’t have the mental capacity to understand the information, but rather that our internal processors are different. It’s like having last year’s processing chip in your computer instead of the latest and greatest. It’s not that the chip can’t handle it at all, but rather at a different pace. If you can gamify the information, then the information is learned on a subconscious level, and just like any video game, new skills are attained little by little as you proceed higher and higher in a game. It’s really THAT simple.

So, for you instructional designers, educational technologists and technical communicators that don’t think that gamification or m-learning makes that much of a difference–IT DOES. Believe me! Keep m-learning and gamification in mind. It not only lends itself well to typical learners, but can go miles farther for those with special needs.